PSYCHOLOGICAL BURDEN, HOPE, AND RESILIENCE AMONG MOTHERS OF AUTISTIC SPECTRUM CHILDREN;  COMPARATIVE STUDY

KAWTHAR ZUBAIR  MALLA; PERJAN HASHIM  TAHA

doi:10.26682/sjuod.2022.25.2.16

KAWTHAR ZUBAIR MALLA College of Nursing, University of Duhok, Kurdistan Region-Iraq
PERJAN HASHIM TAHA College of Medicine, University of Duhok, Kurdistan Region-Iraq

DOI: https://doi.org/10.26682/sjuod.2022.25.2.16

Keywords: Autistic child, Psychological burden, Mother, Children, Hope, Resilience

Abstract

BACKGROUND AND OBJECTIVES: Autism spectrum disorder (ASD) is a lifelong neurodevelopmental disability includes deficits in social, communication skills and repetitive behaviors. The aim of the study was to compare the levels of psychological burden, hope, and resilience of mothers who have autistic child in comparison to mothers who have normal child.

SUBJECTS AND METHODS: A comparative cross-sectional study was conducted using a non-random sampling of 195 mothers of autistic child selected from governmental and private autism centers and a comparative group of mothers of normal children from Duhok province Iraq in a period of three months from 15^th November 2021 to 15^th February 2022. A battery of instruments was used to assess psychological burden, hope and resilience.

RESULTS: The study revealed that the stress, anxiety, and depression level mean scores were higher in mothers who have autistic child, Stress; (M=23.31, SD=5.442), Anxiety; (M=11.78, SD=4.045), and Depression; (M=13.24, SD=4.744) compared to scores in non-autistic mothers (M=7.48, SD=4.576), (M=4.16, SD=2.643), and (M=4.91, SD=2.852) respectively. Furthermore, the hope and resilience mean scores were lower in mothers who have autistic child hope; (M=35.18, SD=7.716) and resilience; (M=2.82, SD=0.608) respectively, compared to scores in non-autistic mothers (M=47.69, SD=5.371) and (M=3.86, SD=0.481) respectively. The study found that staying in the center and being a divorced mother were the mostly demographic factor having highly significant relationship with psychological burden, hope, and resilience.

CONCLUSIONS: The mothers of autistic children were significantly experiencing higher level of psychological burden and a lower level of hope and resilience as compared to mothers who have normal children. These findings are important for mental health planning for mothers of autistic children

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References

REFERENCES
Al-Farsi YM, Waly MI, Deth RC, Al-Sharbati MM, Al-Shafaee M, Al-Farsi O, et al. (2013). Low Folate and Vitamin B12 Nourishment is Common in Omani Children with Newly Diagnosed Autism. Nutrition, 29. (3). 537-41. DOI: https://doi.org/10.1016/j.nut.2012.09.014.
Al Towairqi W, Alosaimi W, Al Zaidi S, Helmy FF and Al Sherif E (2015). Depression among Mothers of Autistic Spectral Disorder Children. International Journal of Contemporary Pediatrics, 2. (2). 119-26. DOI: 10.5455/2349-3291.ijcp20150511.
Almansour MA, Alateeq MA, Alzahrani MK, Algeffari MA and Alhomaidan HT (2013). Depression and Anxiety among Parents and Caregivers of Autistic Spectral Disorder Children. Neurosciences Journal, 18. (1). 58-63.
Altourah AJ, Al Ansari AM and Jahrami HA (2020). Depression, Anxiety and Stress among Mothers of Children with Autism Spectrum Disorder. Bahrain Medical Bulletin, 42. (2). 125-8. DOI: 10.7759/cureus.23284.
Bitsika V, Sharpley CF and Bell R (2013). The Buffering Effect of Resilience Upon Stress, Anxiety and Depression in Parents of a Child with an Autism Spectrum Disorder. Journal of Developmental and Physical Disabilities, 25. (5). 533-43. DOI: 10.1007/s10882-013-9333-5.
Cetinbakis G, Bastug G and Ozel-Kizil E (2020). Factors Contributing to Higher Caregiving Burden in Turkish Mothers of Children with Autism Spectrum Disorders. International journal of developmental disabilities, 66. (1). 46-53. DOI: 10.1080/20473869.2018.1478630.
Christensen DL, Matthew J. Maenner, Bilde D, Constantino JN, Daniels J, Durkin MS, et al. (2019). Prevalence and Characteristics of Autism Spectrum Disorder among Children Aged 4 Years—Early Autism and Developmental Disabilities Monitoring Network, Seven Sites, United States, 2010, 2012, And 2014. MMWR Surveillance Summaries, 68. (2). 1. DOI: 10.15585/mmwr.ss6802a1.
Cohen S, Kamarck T and Mermelstein R (1983). A Global Measure of Perceived Stress. Journal of health and social behavior. 385-96. Available from: https://www.ncbi.nlm.nih.gov/pubmed/6668417.
Davis NO and Carter AS (2008). Parenting Stress in Mothers and Fathers of Toddlers with Autism Spectrum Disorders: Associations with Child Characteristics. Journal of autism and developmental disorders, 38. (7). 1278. DOI: 10.1007/s10803-007-0512-z.
Ekas NV, Pruitt MM and Mckay E (2016). Hope, Social Relations, and Depressive Symptoms in Mothers of Children with Autism Spectrum Disorder. Research in Autism Spectrum Disorders, 29. 8-18. DOI: 10.1016/j.rasd.2016.05.006.
Ersoy K, Altin B, Sarikaya BB and Özkardaş OG (2020). The Comparison of Impact of Health Anxiety on Dispositional Hope and Psychological Well-Being of Mothers Who Have Children Diagnosed with Autism and Mothers Who Have Normal Children, In Covid-19 Pandemic. Sosyal Bilimler Araştırma Dergisi, 9. (2). 117-26. Available from: https://dergipark.org.tr/en/pub/ssrj/issue/54392/737630.
Fido A and Al Saad S (2013). Psychological Effects of Parenting Children with Autism Prospective Study in Kuwait. Open Journal of Psychiatry. DOI: 10.4236/ojpsych.2013.32A002.
Gwinn C and Hellman C (2018). Hope Rising: How the Science of Hope Can Change Your Life. Morgan James Publishing.
Halstead E, Ekas N, Hastings RP and Griffith GM (2018). Associations between resilience and the well-being of mothers of children with autism spectrum disorder and other developmental disabilities. Journal of Autism and Developmental Disorders, 48. (4). 1108-21. DOI: org/10.1007/s10803-017-3447-z.
Hayes SA and Watson SL (2013). The Impact of Parenting Stress: A Meta-Analysis of Studies Comparing the Experience of Parenting Stress in Parents of Children with and Without Autism Spectrum Disorder. Journal of autism developmental disorders, 43. (3). 629-42. DOI: 10.1007/s10803-012-1604-y.
Hodges H, Fealko C and Soares N (2020). Autism Spectrum Disorder: Definition, Epidemiology, Causes, and Clinical Evaluation. Translational pediatrics, 9. (Suppl 1). S55. DOI: 10.21037/tp.2019.09.09.
Khawar R and Saeed S (2016). Autism; Stressful Parenting Outcomes for Mothers. Journal of Pakistan Psychiatric Society, 24. (24.2). 853.
Kroenke K and Spitzer RL (2002). The PHQ-9: A New Depression Diagnostic and Severity Measure. Psychiatric annals, 32. (9). 509-15. DOI: 10.3928/0048-5713-20020901-06.
Lin L-Y (2015). Coping Strategies, Caregiving Burden, and Depressive Symptoms of Taiwanese Mothers of Adolescents with Autism Spectrum Disorder. Research in Autism Spectrum Disorders 15(4). 1-9. DOI: 10.1016/j.rasd.2015.04.002.
Lovell B, Moss M and Wetherell MA (2015). The Psychophysiological and Health Corollaries of Child Problem Behaviours in Caregivers of Children with Autism and ADHD. Journal of Intellectual Disability Research, 59. (2). 150-7. Available from: https://www.ncbi.nlm.nih.gov/pubmed/23889770.
Ogston PL, Mackintosh VH and Myers BJ (2011). Hope and Worry in Mothers of Children with an Autism Spectrum Disorder or Down Syndrome. Research in Autism Spectrum Disorders, 5(4), 1378-1384. (4). 1378-84. DOI: 10.1016/j.rasd.2011.01.020.
Pavao SL, Barbosa KAF, De Oliveira Sato T and Rocha NACF (2014). Functional Balance and Gross Motor Function in Children with Cerebral Palsy. Research in developmental disabilities, 35. (10). 2278-83. DOI: 10.1016/j.ridd.2013.10.029.
Picardi A, Gigantesco A, Tarolla E, Stoppioni V, Cerbo R, Cremonte M, et al. (2018). Parental Burden and its Correlates in Families of Children with Autism Spectrum Disorder: A Multicentre Study with Two Comparison Groups. Clinical practice epidemiology inmental health:CPEMH, 14. 143. DOI: 10.2174/1745017901814010143.
Ruiz-Robledillo N, De Andrés-García S, Pérez-Blasco J, González-Bono E and Moya-Albiol L (2014). Highly Resilient Coping Entails Better Perceived Health, High Social Support and Low Morning Cortisol Levels in Parents of Children with Autism Spectrum Disorder. Research in Developmental Disabilities, 35. (3). 686-95. DOI: 10.1016/j.ridd.2013.12.007.
Shattnawi KK, Bani Saeed WM, Al-Natour A, Al-Hammouri MM, Al-Azzam M and Joseph RA (2021). Parenting a Child With Autism Spectrum Disorder: Perspective of Jordanian Mothers. J Transcult Nurs, 32. (5). 474-83. DOI: 10.1177/1043659620970634. Available frome: https://www.ncbi.nlm.nih.gov/pubmed/33150858.
Sinha D, Verma N and Hershe D (2016). A Comparative Study of Parenting Styles, Parental Stress and Resilience among Parents of Children Having Autism Spectrum Disorder, Parents of Children Having Specific Learning Disorder and Parents of Children Not Diagnosed with Any Psychiatric Disorder. Ann Int Med Dent Res, 2. 106-12. DOI: 10.21276/aimdr.2016.2.4.30.
Sipowicz K, Pietras T, Podlecka M and Mokros Ł (2022). The Association Between Depression and Perceived Stress among Parents of Autistic and Non-Autistic Children—the Role of Loneliness. International Journal of Environmental Research and Public Health, 19. (5). 3019. DOI: https://doi.org/10.3390/ijerph19053019.
Smith BW, Dalen J, Wiggins K, Tooley E, Christopher P and Bernard J (2008). The Brief Resilience Scale: Assessing the Ability to Bounce Back. International journal of behavioral medicine, 15. (3). 194-200. DOI: 10.1080/10705500802222972.
Snyder CR, Harris C, Anderson JR, Holleran SA, Irving LM, Sigmon ST, et al. (1991). The Will and the Ways: Development and Validation of an Individual-Differences Measure of Hope. Journal of personality and social psychology, 60. (4). 570. DOI: 10.1037/0022-3514.60.4.570.
Spitzer RL, Kroenke K, Williams JB and Löwe B (2006). A Brief Measure for Assessing Generalized Anxiety Disorder: The GAD-7. Archives of internal medicine, 166. (10). 1092-7. DOI: 10.1001/archinte.166.10.1092.
Steel P, Beugelsdijk S and Aguinis H (2021). The Anatomy of An Award-Winning Meta-Analysis: Recommendations for Authors, Reviewers, and Readers of Meta-Analytic Reviews. Journal of International Business Studies,, 52. (1). 23-44.
Tzur Bitan D, Zilcha-Mano S, Ganor O, Biran L and Bloch Y (2018). Routine Measurement and Feedback in Support Groups for Parents of Children with Autistic Spectrum Disorder. Psychotherapy, 55. (2). 191. DOI: 10.1037/pst0000140.